Tom has no real appetite or strength. We are trying multiple ideas (herbal, medical, food) to get calories into him along with as many vitimins as possible.
Since Saturday, Tom is down to 1 solid food meal a day. Other than that, he is drinking Carnation Instant Breakfast - think Ensure, but better tasting. There are some liquid medicines that taste pretty bad. They seem to hide ok in the Instant Breakfast or even just chcolate milk.
Speaking of bad tasting meds...There is a steroid (Megace) that he was given when he was first diagnosed. It didn't seem to work then, but since nothing else seems to be working, we're trying it again.
The herbal method was working pretty good for him since about the day after he was diagnosed. In the past week, it seems to no longer affect his appetite and just makes him uncomfortable.
We have a second visit from Mike, the hospice nurse, this afternoon. The first week of hospice, we had twice weekly visits. We were doing once a week visits since then, but it seems we are back to twice.
Tom also went from almost never using oxygen, to using it most of the time.
Right now, he is resting fairly comfortably and watching Night of the Iguana.
Sweetheart, my heart felt condolensces that you two are enduring this. My heart breaks for the two of you but it also rejoices that you two found each other and he has someone he loves by his side - cruel as the world can be!
ReplyDeleteI haven't sent him a text because I want him to rest - hearing about baseball will always make me think of him - as he lovingly expounded how "being at home watching baseball was better than that Maury Povich shit" they had on in the waiting room on one his doctor visits.
May you both have strength and peace.
Big Hugs to two wonderful people I've never met but had pleasures to speak with over the years!!!
Wish I would have known about this blog sooner...
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